I am a stay at home mom, who love to cook! my kids have to be dairy free but i let them eat meat if they want it and my husband and I try and stick to as much as a vegan life style as we can. i live in the mid west and hope to get out of here someday! Until then we make the best of it and just enjoy life!
Friday, March 16, 2012
Yesterday was a hard day
so yesterday my Hypersomnia hit me hard, i dreaded driving anywhere and just could not get myself motivated to do anything i was so tired and i almost broke down and i cried a couple times. In the 6 years i have been diagnosed with this i never looked in to a support group, why i have no clue. so i did some research last night and realized there is not one here in missouri but there are ones in other states so i might just join their message boards just so i can be somewhere were someone understands what I'm going though. I hate my insurance, there was one medicine that worked great, i had little side effects and it lasted almost all day but other the years iv had to switch meds for either cost reasons or not having insurance at the time and when i got the insurance i have now i tried to get back on it and they were like well we don't offer that but take this instead and it so happen to be some meds that gave me horrible head aches and made me sick so my doctor wrote them a letter stating i have fred everything under the sun and that i really need this medicine to function and they still turned me down, they said they care about the health and well being of their clients but they just can not approve this medicine and that just really upsets me, how can they deny someone something they need to function everyday and feel like they have some what of a normal life? so i went back on a medicine that i knew did not make me sick but it really does not do much for me and i hate it. i really just want to feel normal for one day and on this medicine i do not, as i sit here and type this i am fighting to not close my eyes and fall asleep. coffee does not work and i can drink a whole case of monster energy drinks and it will not do a damn thing and i hate it. i hate feeling tired 24 hours a day, i hate not feeling like i can't do anything because I'm tired, i just hate everything about this and i keep hoping i will wake up one day and everything will be different but i know it won't be. i feel bad for my kids because as hard as i try i do not have the energy it takes to keep up with them and play. It is really hard to read my daughter books before bed and i feel horrible because she does not understand. well i will stop complaining for now.. i hope very one has a great day!
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